Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up-to-date NF information, read our latest Newsletter.
NF Warrior and Jr. Chef Caden
Caden is a bright, funny, 14-year-old boy. You wouldn’t know at first glance that Caden is anything other than an average young man; yet he’s nothing short of a warrior. He’s fought for every skill achieved and continues to fight every day to be a typical teenage boy. From the moment he was born, Caden faced many minor health challenges. At 2 years and 3 months old, an x-ray revealed Caden had congenital pseudoarthrosis of his left fibula. Based on this diagnosis and the presence of multiple birthmarks on his body, plus developmental delays, Caden was diagnosed with Neurofibromatosis (NF) Type 1. Caden has had multiple surgeries on his leg to repair the diseased bone and the effects on his leg’s skeletal system. He never lets his surgeries hold him back; learning to climb in a bent-knee cast that was meant to keep him immobile. Caden also struggles with slow growth, behavioral challenges, and learning disabilities as a result of his NF1 and his brain tumor. He somehow still manages to face every day with lots of energy and is often described as being “full of life”. Read more about Caden here.
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