Neurofibromatosis is the most common neurological disorder caused by a single gene, and it affects one out of every 3,000 people worldwide. NF is more prevalent than Cystic Fibrosis and Muscular Dystrophy combined. Currently there is no cure, no long-term treatments or any prevention for NF.
NF involves the uncontrolled growth of tumors along the nerves anywhere in the body, internal and external, and at any time throughout an individual’s life. It is linked to learning disabilities, high blood pressure and epilepsy, and it can affect the development of the brain, cardiovascular system, bones and skin. NF can result in terrible disfigurement, deformity, deafness, blindness, brain tumors, cancer and even death.
The Texas Neurofibromatosis Foundation® a nonprofit organization, was formed in 1980 to battle neurofibromatosis and to serve the increasing number of men, women and children in Texas suffering with this disorder.
Our mission is to meet the needs of people impacted by neurofibromatosis by providing comfort, support, education, advocacy and funding of research for a treatment, prevention or cure.
There are many ways you can help!
PARTICIPATE. ADVOCATE. DONATE.
For the most up-to-date NF information, read our latest Newsletter.
Online ticket sales for Cookies with Santa is CLOSED. Tickets are available at the door. However, there is still time to give the perfect gift! You can make a donation to “Cookies with Santa” in honor of your special friend or loved one and we will send them a holiday greeting acknowledging your gift! Your gift will support patient outreach programs in Houston and provide funds to the NF Clinics at MD Anderson Cancer Center and Texas Children’s Hospital. Our 4th annual Cookies with Santa is a holiday fundraiser and magical experience for the whole family on Saturday, December 3, 2016, at MD Anderson. Read more about Cookies with Santa 2016 here.
UPCOMING EVENTS SEE ALL»
Join us for the 4th annual Cookies with Santa! NF patients, families and friends can celebrate the holidays with festive crafts, holiday music, caroling, cookies, hot cocoa and of course ...
The Fort Worth NF Support Group is having a holiday party on Thursday, December 8th 6:00-7:30. There will be food, fun, friends, crafts, and a special surprise ...